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-   -   GI issue - can't figure this out (http://forums.pelicanparts.com/off-topic-discussions/1132992-gi-issue-cant-figure-out.html)

ramonesfreak 01-15-2023 04:48 PM

I have diverticulitis confirmed by colonoscopy a few years ago after landing in hospital with an abscess. Ruined the last 48 hours and many many weekends the last few years. No idea what I ate this time. Even when being careful, I can no longer predict what will cause a flare up. Two years ago I was eating cliff bars on mtn bike rides because I have diabetes and was trying to have food with me. Bad idea. Never been tested for allergies. I think it was oatmeal cookies my wife made this time. I can tell my issue is getting worse as the years go. I feel your pain

cstreit 01-15-2023 06:45 PM

Quote:

Originally Posted by ramonesfreak (Post 11897665)
I have diverticulitis confirmed by colonoscopy a few years ago after landing in hospital with an abscess.

Thats the really frustrating bit. Every bite is russian roulette. Swear I have PTSD around eating.

..but whatever this is can't be too bad, I've only lost 5# after 6 months...

NY65912 01-16-2023 05:15 AM

I have Crohn's and a bad flare is miserable. Any blood in the stool? Weight loss?

I have had strictures in the ileum and been hospitalized 3 times with threats of surgery. Each time I was put on a IV drip feeding me, nothing by mouth for 7-10 days. Last time treated with Prednisone and it resolved in a week. Flu like symptoms, extreme pain encompassing the entire abdomen especially right side belt line, back ache and bad nausea, that's Crohn's. I have wanting to die during an attack.

I would seek out another GI doc for a second or third opinion.

Best of Luck

astrochex 01-16-2023 05:34 AM

With her crohns, my wife did go through a weight loss phase. It was scary.

techman1 01-16-2023 06:30 AM

While you are controlling your diet, does that extend to liquid intake? Specifically water. Are you on well water or main line? Any changes that only you have a dramatic reaction to? Small increase of xxxx that mildly bothered you before, now the increase really gets to you.
Just thinking out of the box.

cstreit 01-21-2023 07:48 PM

Well thank you for all of your ideas and well wishes. The cycle between "wait to get an appointment", get tests, get negative results, get another appointment was not working for me. My symptoms were getting more frequent and less manageable. I saw a point where there were no more good days coming fast.

Over the last few weeks i went on a very limited and mostly liquid diet to no avail. Got home from a work trip a 7P friday and woke up at 4A in pain that made me sweat and gasp so I went to the ER because I needed a sense of urgency that I wasn't getting.

Diagnosis? "Smoldering diverticulitis." Essentially it had become chronic over the last 6-8 weeks and I was not able to shake it. So they admitted me and gave IV antibiotics for 36 hours which turned things around quickly. Just got released tonight with oral antibiotics.

3 different GI's basically said its well past time for surgery. Ive been "managing" it for 7 years but they said after 3-5 major episodes its time. I've had 3 this year alone and more than 7 previous years. ...so plan is get the colon temporarily happy and then go under the (robot) knife. Not looking forward to that, but I AM looking forward to getting back to normal life.

Noah930 01-21-2023 08:03 PM

Best wishes for a successful and uneventful sigmoid colectomy.

pwd72s 01-21-2023 10:12 PM

Hope it all goes smoothly. A big plus on your side is no infection to begin with plus a much better procedure than the two I endured a few decades ago. Dittos on uneventful..

cstreit 01-22-2023 05:14 AM

Quote:

Originally Posted by pwd72s (Post 11902969)
Hope it all goes smoothly. A big plus on your side is no infection to begin with plus a much better procedure than the two I endured a few decades ago. Dittos on uneventful..

Thanks. Well I sure hope we can get this tamped down in time for surgery. No infection or inflammation makes the surgery much easier and lowers the complication rates. The robot surgery is much less invasive. (still feels weird saying that, but I've watched some videos and I get it, pretty cool) They say 3-7 days in hospital plus 6 week for full recovery.

smadsen 01-22-2023 09:23 PM

I had a kidney removed about three years ago (cancer) with a DiVinci robot. I went home the next day. Just a few years ago that same surgery was a week or more in the hospital because of the huge incision. I ended up with a couple one-inch incisions, and about a four-inch incision where they removed the kidney out the body. Chances of infection are greatly reduced, there is very little pain, and you heal much quicker with the robotic surgery.

cstreit 01-22-2023 10:38 PM

Quote:

Originally Posted by ramonesfreak (Post 11897665)
I have diverticulitis confirmed by colonoscopy a few years ago after landing in hospital with an abscess. Ruined the last 48 hours and many many weekends the last few years. No idea what I ate this time. Even when being careful, I can no longer predict what will cause a flare up. Two years ago I was eating cliff bars on mtn bike rides because I have diabetes and was trying to have food with me. Bad idea. Never been tested for allergies. I think it was oatmeal cookies my wife made this time. I can tell my issue is getting worse as the years go. I feel your pain

Sadly all you can do is try and manage it. Its not going to go away or "get better". Surgery was always the last thing on my mind - but now its become a serious quality of life issue. ...and looking into the future there are a lot of things I want to do that I wouldn't be able to if this looms over my head.

Multiple GI's have told me the time for surgery for was 3 years ago - so I'm overdue. Hope you are able to figure it out. I'm goign to see an allergist tomorrow because I think there is some trigger - diverticulitis aside - I'd like to know what that is.

unclebilly 01-23-2023 03:36 AM

I’m glad you got it figured. Best of luck in the OR and here’s to a speedy recovery.

http://forums.pelicanparts.com/suppo...s/beerchug.gif

ramonesfreak 02-12-2023 10:42 AM

i’m in the emergency department with the worst flare up ive had. i’m on the morphine now. waiting for CT scan. doc said maybe a bowel perforation. i’d be lying if i said wasn’t a bit scared. this stuff is no joke. gonna miss the superbowl i guess

astrochex 02-12-2023 11:55 AM

Sorry to hear that. I hope the doc ain’t right and that its something far less severe.

ramonesfreak 02-12-2023 12:03 PM

unfortunately ct showed a perforation and i’ll be admitted and a doctor just said a surgeon will be coming to talk to me. damn.

astrochex 02-12-2023 12:08 PM

Nuts. Well, I hope you get a good surgeon or surgeonette and everything goes well.

cstreit 02-12-2023 01:58 PM

Quote:

Originally Posted by ramonesfreak (Post 11921226)
unfortunately ct showed a perforation and i’ll be admitted and a doctor just said a surgeon will be coming to talk to me. damn.

Dang - best of luck ramones... Keep us posted on how you are. Full positive outcomes are quite typical.

I have been in the ER twice in the last month. Infection didn't clear the first time for me. Talking to a Surgeon tuesday with the intent of a more planned approach than you have right now.

ramonesfreak 02-12-2023 02:51 PM

surgeon came and said no perforation but bad infection and must stay here at least 24 hours and once healed i will need to have the bad parts cut out

Noah930 02-12-2023 05:22 PM

So no abscess on CT scan? That would be the best possible news.

cstreit 02-12-2023 07:14 PM

Quote:

Originally Posted by ramonesfreak (Post 11921341)
surgeon came and said no perforation but bad infection and must stay here at least 24 hours and once healed i will need to have the bad parts cut out

Well thats a relief! I was admitted last time and after 36 hours of Zosin I could eat a sandwich with no issues. Best 3 weeks of the last 3 months.. (then the infection came back).

Tried Augmentin last two times - now we're doing the more traditional Levoflaxicin and Metronidazole. I hope this gets it gone so I to can get the bad bit removed.

By June I should be able to eat a good steak. :) Something to look forward to.

john70t 02-13-2023 08:49 AM

Quote:

Originally Posted by ramonesfreak (Post 11921341)
surgeon came and said no perforation

That would be some bad juju there. The peritoneum is the bag which holds in all the important stuff. Uncle had a leaking urinary catheter from surviving cancer decades earlier and his stomach was about the size of a small beach ball. Easy on that diet and we all wish you the best.

NY65912 02-13-2023 09:00 AM

Wishing you all good luck and good health.

Metronidazole (Flagyl) was a horrible antibiotic for me. Made me nauseous and left a really bad taste in my mouth. Hopefully you will not be on it for a long time.

I was once on Flagyl and Cipro which obliterated all my good gut bacteria and lead to a case of C. Diff. no fun.

cstreit 02-13-2023 10:41 AM

Quote:

Originally Posted by NY65912 (Post 11921971)
Wishing you all good luck and good health.

Metronidazole (Flagyl) was a horrible antibiotic for me. Made me nauseous and left a really bad taste in my mouth. Hopefully you will not be on it for a long time.

I was once on Flagyl and Cipro which obliterated all my good gut bacteria and lead to a case of C. Diff. no fun.

Flagyl doesn't bother me much. The Levo does give me insomnia but you know what else does? The feeling of a knife dragging through your guy at 4AM so I'm willing to live with it to get this thing gone!

I'm taking a ton of probiotics for exactly the reason you mentioned. Don't want C. Diff. Probiotic pills twice a day plus probiotic enhanced yoghurt. Once I can get back on fiber I'll add KimChi to that daily regimen. I ain't messin' around. :D

ramonesfreak 02-13-2023 10:59 AM

just got discharged home with augmentin antibiotic. i think last time i was i hospital 6 years ago i was on cipro which i didn’t like. i too am due for the surgery. doc said best do it now while young (51)

Noah930 02-13-2023 09:29 PM

When you do a surgery electively (not an emergency), the risk of complications drops dramatically.

Also, when you do it as an emergency, you have a lot higher chance of winding up with a colostomy. It may be temporary (several months), but that should be motivation for you to get it done electively, and not emergently.

Best of luck to both of you.

cstreit 02-14-2023 05:50 AM

Thanks Noah - have been advised the same. Trying really hard to get mine under control for that very reason. My Surgeon said hte softer, happier, and more pliable everything is, the lower all the risks. (leakage, etc..)

bugstrider 02-14-2023 08:50 AM

GI issue - can't figure this out
 
Quote:

Originally Posted by ramonesfreak (Post 11921226)
unfortunately ct showed a perforation and i’ll be admitted and a doctor just said a surgeon will be coming to talk to me. damn.


Late to the party here….

Had this exact problem in 2011. Thought I had the flu, worst pain I’ve ever had, felt like I was stuck with an ice pick in the gut. Could not breath, blink or even think for about 15 seconds and it all went away then fever, chills and a night of hell.

Next morning I ended up in the ER with free air and fluid in the abdomen, oh yeah, severely septic to boot. Four hours under the knife and was rolled out with an appliance, aka a colostomy. Six days with three high grade antibiotics and finally kicked the fever. Three months later, back in surgery for a “take-down”, aka colostomy reversal. I sustained a perforation in the sigmoid colon and 7” had to be removed. What does removing a chunk of the sigmoid colon means you ask… Means I lost a good portion of the area that is in charge of water absorption, and now I must drink tons of water to keep things in check. Also get to enjoy frequent scopes as well.

I am telling you/everything this because this is no joke. The surgeon told me another four hours and my body would have been past the point of no return. Prior to this, I was in the gym regularly and only 43. Hit me like a freight train. I was very lucky.

Please for the love of god don’t mess around with this and take care of yourself.


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ramonesfreak 02-14-2023 01:53 PM

A nice motivational article
https://happyherbivore.com/2014/10/how-tommy-precancerous-stomach-diverticulitis/

I was a vegetarian from 1991 to 2004 and I never had any issues, though of course I was a lot younger.

All my years of smoking (about 31 years- quit 7 years ago), extreme alcohol drinking, eating all the ribs and burgers and butter and cheese and you name it that I wanted have now taken their toll.

I should have taken my health seriously when I got diagnosed with diabetes 5 years ago but I admit, I didn’t do a damn thing about it. Just threw my glucose monitor in the drawer and relied on the meds that have done little except cause more issues

Like the guy in the article, I really have no choice at this point but to put in the hard work and dedication and do what’s right for myself

The chickens have come home to roost


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