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Double Trouble
 
targa911S's Avatar
 
Join Date: Nov 2002
Location: North of Pittsburgh
Posts: 11,705
anyone here ever have blastic plasmacytoid dendritic cell neoplasm?

rare type of leukemia

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I used to be addicted to the hokey pokey..........but I turned myself around..

75 914 1.8
2010 Cayenne base
Old 10-29-2024, 05:54 AM
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Registered
 
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Join Date: Jul 2004
Location: Maryland
Posts: 31,522
Bump.
Old 10-29-2024, 12:56 PM
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FUSHIGI
 
Join Date: Feb 2006
Location: somewhere between here and there
Posts: 10,764
March 2024 information from the web:

https://www.ncbi.nlm.nih.gov/books/NBK589661/
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Old 10-29-2024, 02:15 PM
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Double Trouble
 
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Join Date: Nov 2002
Location: North of Pittsburgh
Posts: 11,705
I guess I'm the only one. doesn't surprise me as there are only 1000 cases worldwide annually. I was diagnosed in august and have been through two cycles of 5 doses in a row of immunotherapy. they say I'm in remission.. I was asking if anybody here had it to see how long they stayed in remission before the beast came back. very little is known about it because of its rarity..what you see on the internet is pretty scary..just asking.....
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I used to be addicted to the hokey pokey..........but I turned myself around..

75 914 1.8
2010 Cayenne base
Old 10-30-2024, 02:09 PM
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Join Date: Nov 2008
Location: Vermont
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Can't help you with blastic plasmacytoid dendridic cell neoplasm but if you need to know about anaplastic tyroid cancer i'm your man (also diagnosed in August).
Hope you beat it David.
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Pete
79 911SC RoW
"Tornadoes come out of frikkin nowhere. One minute everything is all sunshine and puppies the next thing you know you've got flying cows".- Stomachmonkey
Old 10-30-2024, 03:31 PM
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Fleabit peanut monkey
 
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Join Date: Nov 2007
Location: North Canton, Ohio
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Is the immunotherapy a chemotherapy?

I'm reading about stem cell transplants to increase survival time length but I don't understand it.

Tell us a bit about it if you are up to it. If not, it's perfectly ok.

All the best to you (and pete3799)
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1981 911SC Targa
Old 10-31-2024, 03:57 AM
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Join Date: Dec 2002
Location: Dahlonega , Georgia
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Wishing you the best .
Old 10-31-2024, 04:21 AM
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Join Date: Apr 2001
Location: Linn County, Oregon
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****! Piss! ****! Damn! Well, I guess that about covers it.

Hope you got 2nd & 3rd opinions...

Very sorry to hear this.
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Old 10-31-2024, 03:32 PM
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Make Bruins Great Again
 
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Join Date: Dec 2003
Location: TN
Posts: 20,911
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Praying you have a good long time of health.

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Joe
See Porsche run. Run, Porsche, Run: `87 911 Carrera
Old 10-31-2024, 06:00 PM
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