Quote:
Originally Posted by Sarc
let's keep this on the first page...
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Thanks man.
Gary -
Aren't you being a little harsh Gary? Asking for opinion from doctors or people who have first hand experience with corticosteroid doesn't mean that the family physician hasn't been consulted. As I stated, there is no cure for MD and treatments have mixed results and for the most part only provide marginal benefit with side effects that can be worst than the desease. This is not a convenient desease and no one involved is taking it lightly nor out shopping for medical advice at Walmart. If you don't think the family (our family) hasn't considered all options or are doing everything we can, you are mistaken. The likelihood that this child will pass on without living a full adult life is very real to our family, and I am not going to limit my search for knowledge and understanding of the medical and personal affects of the desease.
Because there are few options in treatment of this desease, I think it is appropriate to explore all options, including asking for opinion on this board. My hope was that a doctor or parent with a child struggling with MD would share first hand experience about the affects of corticosteroid. Surely corticosteroid affects individuals differently, but having some knowledge of the range of effects and how it affects patients and their family is the goal of this thread. So please, if you don't have anything positive to add, move along.