Well I Dont Know What To Say
 

Just informed today my daughter will not be ably to leave the hospital with out a lung transplant.
It started 22 years ago with Cystic Fibrosis and just 37 days ago getting a listing for transplant. Until last Sunday she was fairly active being oxygen dependent. My wife and I were just talking to her and she has a huge coughing spell and complain of a huge pain in her chest. I listened to her lungs and could not hear any breath sounds on her right side.
911 and in a few minutes she is rushed code 3 to a level 1 trauma center. We see the X ray and we knew it was a pneumothorax (collapsed lung)
After the X ray they plan on giving her a chest tube and access her medical port to put her out. The nurse could not get blood flow through her port and my wife said she could do it. The lead Doctor tells my wife to scrub into access her port. I was so proud of her.
Well it has been a week and a second chest tube and teams of doctors think it is best to remain in the hospital and wait for the gift of life......Today we have a total of 131 days in the hospital this year.
Watch my wife assess her port at home last month https://www.facebook.com/search/top/?q=just%20breathe%20for%20elissa

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I don't know what to say either...other than prayers sent.

Ditto.

I'll add that I know a gal who recently got a bilateral lung transplant. No more oxygen-tank range anxiety when she's out and about, but even with the good news of that comes the bad. She tells me that she is not likely to become an old woman. --that hit me hard.

I am sorry to read this. Are CF charities making any headway with this disease?

Praying and hoping for the best possible outcome.

Please keep us posted daily, and let us know if there is anything we can do to help.

Best of luck. I remember your posts from last Christmas and was very happy when she did finally make it home.

I can't imagine what you are going through.

Prayers for you and your family mate.
Hope the wait isn't a long one.

Best of luck to you and your family - I'm sure it'll work out okay. Hang in there and be strong (easy to say, hard to do I know...)

All the best for your daughter, you and your family.

We will keep you and your family in our thoughts. I can't imagine what you have to deal with.

Please let Elissa know that a bunch of old farts are pulling for her, and that we find in her all that is noble and inspiring.

Don't give up, don't ever give up.

Many prayers sent in your daughter's behalf.

Yep, and what Seahawk said!!!!!

As always, sending prayers to you family. BUT, just think of how the lung transplant will improve your daughters life!

Hoping for a quick transplant for Elisa and a positive outcome for your family gshase!

All the more reason to tick that box to become a donor, there may still be something life saving there when we are done.

Aloha Richard

Such tragedy... All the best to your family & I pray everything works out for your daughter.

I can't even imagine what you're going through.

wishing for the best possible outcome for you and your family.
take care.

More common than we realize:https://en.wikipedia.org/wiki/Cystic_fibrosis
Around one 1 in 25 people of European descent, and one in 30 of Caucasian Americans,[114] is a carrier of a CF mutation. Although CF is less common in these groups, roughly one in 46 Hispanics, one in 65 Africans, and one in 90 Asians carry at least one abnormal CFTR gene

My family has a history of a different genetic disease, and I've attended funerals with more to come.
My prayers to you and your daughter.

Wow and Wow. I'm not a praying Man, but I'll certainly try.

I wish you strength and love.

Bo

Prayers for Elissa as well as you and your wife.