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Gary H 1978 911 SC
 
Join Date: Oct 2003
Location: Fort Worth Texas
Posts: 1,306
Well I Dont Know What To Say

Just informed today my daughter will not be ably to leave the hospital with out a lung transplant.
It started 22 years ago with Cystic Fibrosis and just 37 days ago getting a listing for transplant. Until last Sunday she was fairly active being oxygen dependent. My wife and I were just talking to her and she has a huge coughing spell and complain of a huge pain in her chest. I listened to her lungs and could not hear any breath sounds on her right side.
911 and in a few minutes she is rushed code 3 to a level 1 trauma center. We see the X ray and we knew it was a pneumothorax (collapsed lung)
After the X ray they plan on giving her a chest tube and access her medical port to put her out. The nurse could not get blood flow through her port and my wife said she could do it. The lead Doctor tells my wife to scrub into access her port. I was so proud of her.
Well it has been a week and a second chest tube and teams of doctors think it is best to remain in the hospital and wait for the gift of life......Today we have a total of 131 days in the hospital this year.
Watch my wife assess her port at home last month https://www.facebook.com/search/top/?q=just%20breathe%20for%20elissa

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Gary H 1978 911 SC
Old 10-02-2016, 09:52 PM
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Join Date: Apr 2001
Location: Linn County, Oregon
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I don't know what to say either...other than prayers sent.
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Old 10-02-2016, 10:35 PM
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Location: an island, upper left coast, USA
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Quote:
Originally Posted by pwd72s View Post
I don't know what to say either...other than prayers sent.
Ditto.

I'll add that I know a gal who recently got a bilateral lung transplant. No more oxygen-tank range anxiety when she's out and about, but even with the good news of that comes the bad. She tells me that she is not likely to become an old woman. --that hit me hard.
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Last edited by island911; 10-02-2016 at 11:07 PM..
Old 10-02-2016, 10:58 PM
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(the shotguns)
 
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Join Date: Feb 2006
Location: Maryland
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I am sorry to read this. Are CF charities making any headway with this disease?
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Well i had #6 adjusted perfectly but then just before i tightened it a butterfly in Zimbabwe farted and now i have to start all over again!
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Old 10-03-2016, 01:03 AM
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Praying and hoping for the best possible outcome.

Please keep us posted daily, and let us know if there is anything we can do to help.
Old 10-03-2016, 01:27 AM
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Bland
 
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Join Date: Nov 2003
Location: I'm 'out there...'
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Best of luck. I remember your posts from last Christmas and was very happy when she did finally make it home.

I can't imagine what you are going through.
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Old 10-03-2016, 01:58 AM
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Prayers for you and your family mate.
Hope the wait isn't a long one.
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I knew it would happen, just not so soon...........
Old 10-03-2016, 01:59 AM
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Dog-faced pony soldier
 
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Best of luck to you and your family - I'm sure it'll work out okay. Hang in there and be strong (easy to say, hard to do I know...)
Old 10-03-2016, 02:39 AM
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All the best for your daughter, you and your family.
Old 10-03-2016, 03:13 AM
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We will keep you and your family in our thoughts. I can't imagine what you have to deal with.
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Old 10-03-2016, 04:24 AM
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Seahawk's Avatar
 
Join Date: Jul 2004
Location: Maryland
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Please let Elissa know that a bunch of old farts are pulling for her, and that we find in her all that is noble and inspiring.

Don't give up, don't ever give up.
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Old 10-03-2016, 04:57 AM
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"O"man(are we in trouble)
 
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Join Date: Nov 2005
Location: On the edge
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Many prayers sent in your daughter's behalf.

Yep, and what Seahawk said!!!!!
Old 10-03-2016, 04:59 AM
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Friend of Warren
 
Join Date: Oct 2000
Location: Lincoln, NE
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As always, sending prayers to you family. BUT, just think of how the lung transplant will improve your daughters life!
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Old 10-03-2016, 05:26 AM
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Join Date: Mar 2008
Location: Fla panhandle / Roaming in my motorhome
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Hoping for a quick transplant for Elisa and a positive outcome for your family gshase!

All the more reason to tick that box to become a donor, there may still be something life saving there when we are done.

Aloha Richard
Old 10-03-2016, 05:39 AM
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Such tragedy... All the best to your family & I pray everything works out for your daughter.

I can't even imagine what you're going through.
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Old 10-03-2016, 06:39 AM
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wishing for the best possible outcome for you and your family.
take care.
Old 10-03-2016, 06:58 AM
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You do not have permissi
 
john70t's Avatar
 
Join Date: Aug 2001
Location: midwest
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More common than we realize:https://en.wikipedia.org/wiki/Cystic_fibrosis
Around one 1 in 25 people of European descent, and one in 30 of Caucasian Americans,[114] is a carrier of a CF mutation. Although CF is less common in these groups, roughly one in 46 Hispanics, one in 65 Africans, and one in 90 Asians carry at least one abnormal CFTR gene

My family has a history of a different genetic disease, and I've attended funerals with more to come.
My prayers to you and your daughter.
Old 10-03-2016, 07:37 AM
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Hugh R's Avatar
 
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Location: southern California
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Wow and Wow. I'm not a praying Man, but I'll certainly try.
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Old 10-03-2016, 07:53 AM
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I wish you strength and love.

Bo
Old 10-03-2016, 07:54 AM
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MBAtarga's Avatar
 
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Prayers for Elissa as well as you and your wife.

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Mark

'83 SC Targa - since 5/5/2001
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Old 10-03-2016, 08:00 AM
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