Thread: Elissa Update
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Gary H 1978 911 SC
 
Join Date: Oct 2003
Location: Fort Worth Texas
Posts: 1,306
Elissa Update

She is still fighting CF, and after being taken off the transplant list in Dallas over a year ago and then applying to all the Lung Transplant centers in Texas and not being accepted, life was not looking very good for us. She was placed on hospice care in November and it looked grim for her. Somehow she bounced back and was taken off hospice after 45 days and treated as a regular patient with clinic visits every month. We are now 10 months post hospice.
Monday September 11th we get a call from Houston and they want evaluate her on the next Wednesday for transplant. The center was very positive and encouraging......She has cultured positive for M.A.C. ( Mycobacterium Avium Complex ) years before and that is a concern. They may want to run a course of antibiotics for it she if she test positive. The course could run 90 days, but again she has not tested positive for years and is test every month. Her Lung Function Test is up from 26 to 32 which is good news.
She enjoys time with friends and going out on our boat.
Life is starting to show some signs of a positive direction. Houston is only 3.6 hours from door to door.
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Gary H 1978 911 SC
Old 09-13-2018, 06:57 PM
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