"The direct-to-consumer testing site quietly agreed last year to help federal investigators solve rapes and murders. The arrangement was not disclosed until last week."
https://www.nytimes.com/2019/02/04/business/family-tree-dna-fbi.html
I'd be interested in knowing who among us has used one of these genetic testing sites, and how carefully you read the privacy provisions.
Related issues:
1. Should a genetic testing company share data with health insurers? Let's say a woman has the "breast cancer gene." By having her data, a health insurer might reach out to her to encourage early detection tests. Or a health insurer might decline to insure her a all, based on her test results. Or they may decide to charge extra for the risk. What's the best outcome?
2. Should employers be allowed to require genetic testing as a condition of employment? That way they can reduce the number of folks in their workforce who need expensive health insurance.
This is once again a situation where a technological advance has been loosed on the world without any corresponding ethical rules to guide it.