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John Rogers John Rogers is online now
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Join Date: Dec 1969
Location: chula vista ca usa
Posts: 5,724
I'll have been on immunotherapy 3 years this coming April. When I started it, I had a cancer spot in the upper section of my left lung. Before I got the 1st dose, I had a meeting with the doctor who had tested this medicine at another hospital, the meeting was about 2 hours long and we went over the effects and side effects that could show up and I was started on a full spectrum blood test that day and the following week I got the first dose. I get both blood work and infusion every 3 weeks and the medicine named Libtayo's only side effect is I get tired and I have to force myself to eat. I use edible TCH to help me sleep with the okay of my surgeon and my oncologist so generally I go to bed about 9PM.

I have Medicare and Tricare For Life and so far, Medicare is footing the $6000 per dose bill and the oncologist said I'll get this for the rest of my life probably. Sounds like the various people your relative has caring for him don't seem to be talking with each other? My Oncologist, surgeon, ear specialist, skin specialist, PET scan specialist all communicate monthly about me and other people getting these meds!
John
Old 12-17-2022, 12:15 PM
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