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Join Date: Aug 2001
Location: midwest
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LB is the second most common of the dementia types following Alzheimer's. Instead of a ten years slide it's a several year roller coaster nightmare until becoming a shell and then gone.
It morphs into a variety of symptoms which could possibly be from other distant causes such as vascular or nervous or hormones. Confusion, shakes, depression, paranoia, etc.

My dad got up middle of the night and wrapped himself around a pole to hold the house up. One of many incidences.
He swam competitive water polo much of his life and ended up using a cpap to breathe at night. Some masks did not seal or made noise keeping everyone awake.
REM is essential for health. Yet hospitals still wake up patients hourly when they are trying to sleep.

Drugs for other other diseases might even make Lewy Bodies worse.

Don't take the first doctor's final professional determination as absolute fact..
If it's not working, then something is still wrong.

This person decided to get off the ride earlier. Mr. Williams was not diagnosed properly until after death. The medical field is still learning but now there are better tests and experimental drugs.
Plaque in the brain cells. There is research into it.
There are also support groups, and practical advice options, for those close who dedicate most of their time caring for a loved one.


https://www.cnn.com/2022/07/01/health/lewy-body-dementia-robin-williams-life-itself-wellness/index.html
That disease is Lewy body dementia, with which the actor was diagnosed in October 2014 following an autopsy on his brain. “A few months before he passed, he was given a Parkinson’s (disease) diagnosis,”

Lewy body dementia has more than 40 symptoms that can randomly appear and disappear, Schneider Williams said. Categorically, the signs include impaired thinking, fluctuations in attention, problems with movement, visual hallucinations, sleep disorders, behavioral and mood issues, and changes in bodily functions such as the ability to control urinating.


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Meanwhile other things are still happening.

Last edited by john70t; 01-23-2025 at 12:13 PM..
Old 01-23-2025, 07:13 AM
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