I too have Cystic Fibrosis, but was totally unaware Early S Man had it too. Its a prick of a disease. He did very well to live to 57.
Its a life long battle, just trying to keep as healthy as the year before. If you can manage to do that you have won the battle for that year.
I worked for CF Victoria in australia for 9 years and the money does help alot. CF sure doesn't gain the same sort of funding as many other diseases so each bit helps.
I know just in my 34 years treatments and outcomes have improved alot, but sadly there is no cure.
RIP early S Man