View Single Post
Cdnone1 Cdnone1 is online now
Registered
 
Join Date: Jan 2003
Location: Los Angeles, CA
Posts: 2,107
Help a dying young man

Hi.
A friend of a friend of mines son is dying. They are driving down from Vancouver on his "fair well "tour of things he would like to see or do before he dies. He has MD and his brother passed away from it a few years ago.
As a Father of two I can't imagine what going through this is like.
One of the things he would like to do before he dies is see up close and personal an exotic car.
He can't get in it and go for a ride because of all his surgeries and he is attached to a respirator, but he would like to see and hear one.
I , unfortunately will be out of town while he is here with his family and my little SC doesn't really count as exotic.
Does anyone have or know someone who has a Ferrari or Lambo they could show this young man?
I've attached the last few E-mails we have exchanged to bring you up to speed.
If any one can help this family out I would gladly buy you a a beer or three when I get back into town


Steve
What a very nice thing for you to offer! Alexander would love it,ut we don't know if he could actually go for a ride. He said that even though he might be able to ride in an exotic sports car; He wouldn't mind checking it out.
Alexander is in a power chair and is on a ventilator about 90 percent of the time. He has had rod surgery on his back because of scoliosis and has had plates put in his hips because his hips became dislocated after an unrelated surgery. He has had some not good experiences on top of his illness.
Alexander has Duchennes Muscular Dystrophy and with all the guy has gone through; He is to this day one of the most positive optimistic people I know.
Alexander was also involved in the modified ski program in Whistler. A ski resort close to our town. He did the sit ski program on Whistler/Blackcomb Mountain before his surgeries. He loved it.
Where do you do your ski program? Have you ever been to Whistler/ Blackcomb Mountains?
I understand that you have a child in a wheelchair as well. Do you mind if I ask about your son?
Thank you again for your kind offer and hope to have the opportunity to meet you guys when we come down!
Susie McCormack
Hi Sue
Unfortunately my family and myself will be out of town at a wedding while you are here, or we would have loved to meet you and your family.
If you let me know a date and time I could try and make arrangements for someone with a really nice car, Porsche, Ferrari, etc come by and visit you so Alexander could check it out in person.
I am Canadian and was just in Vancouver last week. I have spent lots of time at Whistler before it was BlackComb.
We ski out of our local mountain, Big Bear and have been involved in the adaptive program for years.
Our oldest son , Bryce has CP is a quad, non verbal. It's quite a journey sometimes.
Steve
Hi Steve,
Alexander would love to check out a nice sports car so long as it's not to much of an inconvenience.
We will be arriving in Burbank on the afternoon of the 13th; staying until the morning of the 16th. We are staying at the Safari Inn.
I am thinking that maybe in the late morning would be good on the Wed. the 14th, or that evening. As far as I know; We are going to watch the taping of Lopez tonight at 2:30 that day and will head back to the hotel after that. If this works? Our reservation is under my name Susan McCormack if someone wants to call.
I think it is great that you are involved with the adaptive ski program! It is a great program and must be very rewarding for you.
If you and your family are ever visiting up here; we would love to meet you guys! Maybe we could get Kim and her husband Jim up here. I have yet to meet Kim's husband and she has not met my husband yet either. He, unfortunately, will not be traveling with us on this adventure.
I hope I didn't appear to be nosey asking about your son. It's not easy having a child with challenges.
Alexander is our second son with DMD; Our oldest son had DMD, He passed away Jan.1,2004. We also have a beautiful daughter; the baby of our family. She is healthy. She and Alexander are very close.
Thank you for doing this for the offer offer to see the sports car! We sure appreciate this!
Susie McCormack
[/COLOR]

Please, please and thank you
Steve
__________________
1982 SC
Old 04-13-2010, 07:02 PM
  Pelican Parts Catalog | Tech Articles | Promos & Specials    Reply With Quote #1 (permalink)