[Cdnone1]

I thought I'd post this. I'm sure Susie would mind.

Hello Dane,

I am attaching a few others to this e-mail. I hope that you do not mind.

It is to bad we could not meet up with you and your group. Just poor timing on our part. We sure do appreciate your efforts. He just had to slow down for a few days to re- energize.

As you are probably aware; Alexander's condition is not the greatest. He has Duchene's Muscular Dystrophy and is the later stages of this horrible disease.

Last spring,(March 22,2009) Alexander got sick with a virus. It attacked his lungs and was not expected to survive this. He was at that point trached and has been ventilated ever since. He somehow with his inner drive and determination did pull through this. He had one other scare in late January.

We have had to face the realization of where Alexander is at. As parents, my husband and I know what is ahead. Sometimes you just don't want to see what is in front of you. This is our second child with Muscular Dystrophy; Alexander had an older brother who passed away at the age of 24. It is one of those situations where we just take each day as it comes. We will always have hope for him but know that it is the quality of life for him. Each day with him is a blessing and we do not take it for granted. Pretty much something we all have to do in our lives but sometimes we forget what it`s all about.

You all have given him something that I can't even explain. This is something we could never have done without all of the love and kindness you have shown him. We will never forget this and can never thank you all enough. He truly feels like he matters in the world!

On the other hand. As far as Alexander is concerned; He is saying that he is going to bring his Dad down to meet all of his "new friends"! He is determined that he will be back down this winter/ next spring. You never know! He might just pull it off. And if we are able to do this for him we will.

I hope that we are able to still correspond with everyone. As Alexander feels that he has made some of the best friends in the world. I think he is right. We all feel the same way!
Many Thanks
Susie McCormack

Thanks to everyone for all you have done
Steve