[Heel n Toe]

Keith, one thing that is important for the family to know is that the progression of the disease is not always linear.

It can be linear for awhile, then get worse relatively suddenly, with the patient becoming combative, needing lots of help with daily activities like eating, bathing, etc. ....and sometimes losing bowel control; many times physician will tell the family they should be prepared for 24/7 caregiving in the next few months, etc.

Or to begin looking for an assisted living facility or nursing home, because if one waits until the disease gets beyond a certain point, there may be long waiting lists at the best places. It's better to look sooner than later.