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Gary H 1978 911 SC
Join Date: Oct 2003
Location: Fort Worth Texas
Posts: 1,306
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Elissa.....Not Good News
Today Elissa received unfortunate news. UTSW TRANSPLANT Team has permanently REMOVED her from transplant list after 2 years. The board of doctors feel they are not equipped to successfully treat her after transplant due to her many resistant bacteria. Hope is not totally gone.... we are looking at transferring Elissa to Houston Methodist Hospital which boasts the largest transplant facility in the nation Or moving to Durham, NC to Duke University hospital which is also one of the best high risk transplant hospital. I have started the process to both. Her life since she was born has continued to give her mountains to climb. She is a fighter, but the bacteria fight is winning. Definitely not how we wanted to spend Halloween. Currently, she is home. However, she has symptoms of infection again with fever and light hemastosis. The ER is in her future once again.
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Gary H 1978 911 SC |
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10-31-2017, 02:32 PM
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G'day!
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Very sorry to hear, Gary...please let her know she is in our thoughts and prayers.....
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Old dog....new tricks..... |
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10-31-2017, 02:33 PM
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Registered
Join Date: Jan 2012
Location: NW Ohio
Posts: 9,733
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Man, that sucks.....it's OK when it's happening to ourselves, but kids shouldn't have to be brave like that. Prayers for you, and your family.
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10-31-2017, 02:42 PM
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Join Date: Apr 2002
Posts: 30,903
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That's terrible news Gary, but don't lose hope...
If by chance you end up at Duke...well, miracles happen there! Let us NC pelicans know if we can help your transition if you do.... Best wishes to you all.... |
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10-31-2017, 02:42 PM
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Registered
Join Date: Jul 2004
Location: Maryland
Posts: 31,758
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I have written three or four posts hoping to find the right note or sentiment given your post. None of them passed muster since I don't know how you folks manage this so well, so courageously.
I can only say this: Your family is an inspiration, Elissa is remarkable.
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1996 FJ80. |
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10-31-2017, 02:43 PM
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Bland
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Gary - that's horrible news and not something any parent (or daughter) should have to live with - I have no words. Keep fighting. I hope everything works out for Elissa. Best of luck.
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06 Cayenne Turbo S and 11 Cayenne S 77 911S Wide Body GT2 WCMA race car 86 930 Slantnose - featured in Mar-Apr 2016 Classic Porsche Sold: 76 930, 90 C4 Targa, 87 944, 06 Cayenne Turbo, 73 911 ChumpCar endurance racer - featured in May-June & July-Aug 2016 Classic Porsche |
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10-31-2017, 02:44 PM
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Registered
Join Date: Apr 2001
Location: Linn County, Oregon
Posts: 48,802
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Quote:
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"Now, to put a water-cooled engine in the rear and to have a radiator in the front, that's not very intelligent." -Ferry Porsche (PANO, Oct. '73) (I, Paul D. have loved this quote since 1973. It will remain as long as I post here.) |
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10-31-2017, 02:53 PM
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Good luck and best wishes to your family and especially Elissa. Her strength is remarkable and unrelenting.
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Rutager West 1977 911S Targa Chocolate Brown |
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10-31-2017, 02:54 PM
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"O"man(are we in trouble)
Join Date: Nov 2005
Location: On the edge
Posts: 16,452
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Sorry to hear this, praying for her and your family. She must be a very determined young lady!
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10-31-2017, 03:51 PM
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Driver, not Mechanic
Join Date: May 2013
Location: SF Bay Area
Posts: 3,024
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Sad news... keep fighting the good fight...
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10-31-2017, 04:01 PM
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I'm so sorry to hear of this latest setback. Praying for her to keep climbing those mountains until she gets to the top.
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10-31-2017, 04:05 PM
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Registered
Join Date: Jan 2006
Location: Fullerton,Ca
Posts: 5,463
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hugs
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" Formerly we suffered from crime. Today we suffer from laws" (55-120) Tacitus |
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10-31-2017, 04:45 PM
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(the shotguns)
Join Date: Feb 2006
Location: Maryland
Posts: 22,159
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Don’t know what to say other than I wish your family the best. Maybe hugs is the right thing.
Wish we could make it better. Sent from my iPhone using Tapatalk
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***************************************** Well i had #6 adjusted perfectly but then just before i tightened it a butterfly in Zimbabwe farted and now i have to start all over again! I believe we all make mistakes but I will not validate your poor choices and/or perversions and subsidize the results your actions. |
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10-31-2017, 04:50 PM
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FUSHIGI
Join Date: Feb 2006
Location: somewhere between here and there
Posts: 10,810
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Sucks.
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10-31-2017, 05:52 PM
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Registered
Join Date: Sep 2007
Location: Ventura County, CA
Posts: 4,018
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I'm so sorry. I can't even imagine how difficult this must be for your family. You're doing what you can now. Never give up.
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Craig T Volvo V60 - Daily Driver (I love it!) 997 Turbo - FVD Exhaust, GIAC Tune - 542 dyno hp on 93 oct 1972 Chevy K-10 Pick-Up Truck Hugger Orange 
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10-31-2017, 05:59 PM
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Almost Banned Once
Join Date: Feb 2009
Location: Adelaide South Australia
Posts: 38,807
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After reading the tile I was scared to click on this thread.
Elissa & your family are in my prayers.
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- Peter |
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10-31-2017, 05:59 PM
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Cars & Coffee Killer
Join Date: Sep 2004
Location: State of Failure
Posts: 32,246
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Some Porsches long ago...then a wankle... 5 liters of VVT fury now -Chris "There is freedom in risk, just as there is oppression in security." |
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10-31-2017, 06:44 PM
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Insert Tag Line HERE.....
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Prayers...
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Marc |
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10-31-2017, 06:50 PM
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On Tour
Join Date: Apr 2010
Location: New Mexico
Posts: 1,526
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Hmmm..this update is hard to process. So wishing the best for her..
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- 2018 Cayenne S 958.2 - 1988 Carrera 3.2 Coupe Marine Blue (SOLD) |
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10-31-2017, 06:55 PM
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Cars and Cappuccino
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So Gary, FWIW my wife had to seek treatment at Duke when we were faced with a very serious medical challenge - different from Elissa's challenges. Fortunately, it worked out for us and my wife is healthy and happy today. The Duke experience was really good, but not without the occasional rough patch. As great as they are at Duke, you still need to advocate for yourselves and ask a lot of questions. Not EVERYONE at every station is a world class performer. Some are just regular clock-punchers. We have ZERO regrets about choosing Duke over our local hospital. We are both extremely glad we took on the travel challenge to get to Durham every other week (about a 3 hour drive each way) for 10 months. Small price to pay for my wife's continued health. Good luck with whatever path you decide to travel.
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http://www.carsandcappuccino.com 1987 Grand Prix White "Outlaw" Turbo Coupe w/go-fast bits 1985 Prussian Blau M491 Targa 1977 Mexico Blue back-dated,flared,3.2,sunroof-delete Coupe 1972 Black 911 T Coupe to first factory Turbo (R5 chassis) tribute car (someday) |
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10-31-2017, 07:05 PM
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1964 Porsche 356 C Sunroof coupe
1972 Porsche 914 2.0 fuel injected
1983 Porsche 911 SC Targa
Work vehicle
Crop Duster
Kachow
1976 Porsche 930
1977 Porsche 911S Targa
78 Porsche 911 Turbo
1972 porsche 72 rsr clone
1995 porsche 993
1995 porsche 993
1990 porsche C2 911
1966 porsche 911
1984 Porsche 911
2003 Porsche 996
