Just informed today my daughter will not be ably to leave the hospital with out a lung transplant.
It started 22 years ago with Cystic Fibrosis and just 37 days ago getting a listing for transplant. Until last Sunday she was fairly active being oxygen dependent. My wife and I were just talking to her and she has a huge coughing spell and complain of a huge pain in her chest. I listened to her lungs and could not hear any breath sounds on her right side.
911 and in a few minutes she is rushed code 3 to a level 1 trauma center. We see the X ray and we knew it was a pneumothorax (collapsed lung)
After the X ray they plan on giving her a chest tube and access her medical port to put her out. The nurse could not get blood flow through her port and my wife said she could do it. The lead Doctor tells my wife to scrub into access her port. I was so proud of her.
Well it has been a week and a second chest tube and teams of doctors think it is best to remain in the hospital and wait for the gift of life......Today we have a total of 131 days in the hospital this year.
Watch my wife assess her port at home last month
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