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Gary H 1978 911 SC
Join Date: Oct 2003
Location: Fort Worth Texas
Posts: 1,306
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Elissa Update
She is still fighting CF, and after being taken off the transplant list in Dallas over a year ago and then applying to all the Lung Transplant centers in Texas and not being accepted, life was not looking very good for us. She was placed on hospice care in November and it looked grim for her. Somehow she bounced back and was taken off hospice after 45 days and treated as a regular patient with clinic visits every month. We are now 10 months post hospice.
Monday September 11th we get a call from Houston and they want evaluate her on the next Wednesday for transplant. The center was very positive and encouraging......She has cultured positive for M.A.C. ( Mycobacterium Avium Complex ) years before and that is a concern. They may want to run a course of antibiotics for it she if she test positive. The course could run 90 days, but again she has not tested positive for years and is test every month. Her Lung Function Test is up from 26 to 32 which is good news. She enjoys time with friends and going out on our boat. Life is starting to show some signs of a positive direction. Houston is only 3.6 hours from door to door.
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Gary H 1978 911 SC |
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09-13-2018, 05:57 PM
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Registered
Join Date: Apr 2008
Location: Houston
Posts: 309
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Gary if you make it Houston for any extended time for tests/treatment please let the board know. There are several of us here in the Houston area that I will speak for, we would help you and your family in any way we can.
My kindest thoughts to you and yours. |
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09-13-2018, 06:18 PM
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Driver, not Mechanic
Join Date: May 2013
Location: SF Bay Area
Posts: 3,006
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Thanks for the update. Always hoping for the best.
And here I am complaining about the weather... |
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09-13-2018, 07:19 PM
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The Unsettler
Join Date: Dec 2002
Location: Lantanna TX
Posts: 23,885
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I'm up the road, as are a few others here.
If you need to bug out and need to have someone look after anything on the home front just call.
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"I want my two dollars" "Goodbye and thanks for the fish" "Proud Member and Supporter of the YWL" "Brandon Won" |
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09-13-2018, 08:19 PM
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Registered
Join Date: Jan 2001
Location: So. Cal.
Posts: 9,114
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Yes, thanks for the update. I continue to be impressed at this young lady's ability to amaze us and am wishing the absolute best for her & the family.
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Marv Evans '69 911E |
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09-13-2018, 08:20 PM
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(the shotguns)
Join Date: Feb 2006
Location: Maryland
Posts: 21,688
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Thank you for the update. So glad to hear of some victories.
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***************************************** Well i had #6 adjusted perfectly but then just before i tightened it a butterfly in Zimbabwe farted and now i have to start all over again! I believe we all make mistakes but I will not validate your poor choices and/or perversions and subsidize the results your actions. |
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09-14-2018, 01:49 AM
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Thoughts and prayers from Canada.
Mike |
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09-14-2018, 03:55 AM
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I see you
Join Date: Nov 2002
Location: NJ
Posts: 29,921
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Elissa' story is always both sobering and uplifting. The strength and love in this family is beyond description in mere words. At least by this man.
Bless you all Gary and for what it is worth hug Elissa for me.
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Si non potes inimicum tuum vincere, habeas eum amicum and ride a big blue trike. "'Bipartisan' usually means that a larger-than-usual deception is being carried out." |
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09-14-2018, 04:00 AM
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Registered ConfUser
Join Date: Aug 2006
Location: Waterlogged
Posts: 23,561
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Wishing all the best to you, Elissa and your family.
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Mike “I wouldn’t want to live under the conditions a person could get used to”. -My paternal grandmother having immigrated to America shortly before WWll. |
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09-14-2018, 04:18 AM
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Registered
Join Date: Jul 2004
Location: Maryland
Posts: 31,521
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Quote:
Best.
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1996 FJ80. |
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09-14-2018, 05:48 AM
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Registered
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Sending thoughts and prayers from WI.
Let me know if cheese or bratwurst would help. If so - I’ll send those too! |
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09-14-2018, 09:33 AM
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Registered
Join Date: Jan 2002
Location: VA
Posts: 3,573
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Great news! Please keep the updates coming.
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'06 Cayman S '16 Cayenne '08 Audi RS 4 |
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09-14-2018, 01:45 PM
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You do not have permissi
Join Date: Aug 2001
Location: midwest
Posts: 39,929
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You both have worked so hard, and given her a life far beyond 'expected' life.
I would wish that for everyone. When or if a transplant takes place place I hope it takes successfully. She is born fighter and medicine will hopefully catch up. Best to you and yours in the meantime.
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Meanwhile other things are still happening. |
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09-14-2018, 02:35 PM
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Bland
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thanks for the update. best wishes to you and your family.
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06 Cayenne Turbo S and 11 Cayenne S 77 911S Wide Body GT2 WCMA race car 86 930 Slantnose - featured in Mar-Apr 2016 Classic Porsche Sold: 76 930, 90 C4 Targa, 87 944, 06 Cayenne Turbo, 73 911 ChumpCar endurance racer - featured in May-June & July-Aug 2016 Classic Porsche |
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09-14-2018, 08:18 PM
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Registered
Join Date: Dec 2002
Location: Dahlonega , Georgia
Posts: 14,671
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That girl is a fighter ! Sounds like good progress it just needs to continue . Good luck in the future and thanks for the update .......... give her a big hug from her Pelican " family "
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2002 Boxster S . Arctic silver + black top/int. Jake Raby 3.6 SS engine " the beast ". GT3 front bumper, GT3 side skirts and GT3 TEK rear diffuser. 1999 996 C4 coupe black/grey with FSI 3.8 engine . Rear diffuser , front spoiler lip with ducktail spoiler . |
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09-15-2018, 03:12 AM
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Nutmeg Brown Carrera
Subaru #3
Crop Duster
Kachow
1976 Porsche 930
