Elissa Is Packing For Duke....Long Term

[Laneco]

This is wonderful news!

angela

[rwest]

Merry Christmas to Elissa and the whole Hase family!

What a great Christmas gift. Please keep us posted.

Best,
Rutager

[klm2500hd]

Praying for Elissa, I don't know what it is, but it seems like whenever I read your updates I always get a little dust in my eyes.

[Seahawk]

Originally Posted by klm2500hd

Praying for Elissa, I don't know what it is, but it seems like whenever I read your updates I always get a little dust in my eyes.

100%...and proudly as we all would add.

Six months is a long time...if you or your wife golf and want to get away for a day, together or separately, my business partner owns a house in Pinehurst and we'd be happy to get you guys on any of the courses there, our treat.

Elissa, a wonderful name btw, is of course welcome as well...she'd probably kick my a$$

Best to you all

[Bugsinrugs]

Pulling for Elissa...hope all goes well.

[bkreigsr]

Gary, I watched 'Five Feet Apart' on SHO last night.

Great insight as to what Elissa is going through in a 'Duke like' hospital setting.

The movie details all the regiments, treatments, and interactions with staff, and fellow CF patients.

spoiler - (I would not be commenting on the movie here if the heroine didn't come through the transplant successfully .)

Prayers for you and the family, as always, Bill K

Any updates?

[LEAKYSEALS951]

I think of this thread often, and I am hoping for the best!

[JavaBrewer]

^ concur with Leaky. Hoping for the best. Hugs and support to your entire family.

[DanielDudley]

Originally Posted by LEAKYSEALS951

I think of this thread often, and I am hoping for the best!

Yes. You and your family are often in my thoughts.

[astrochex]

Gary (accidentally) posted this in another topic

We been in Durham N.C. for 40 days while Elissa attends Duke Cardiopulmonary Rehab. The rehab is 2.5 hours a day walking miles on a indoor oval track while on bottled oxygen pushing a walker, Then weight training and exercise machines. Elissa is the youngest of her class with around 25 people in it. She said her Guy Friend in the class is a 75 year old gentleman who has black lung from working in a coal mine. After her workout we all attend several hours of classes on all the issues related to transplant.( rejection, medications, sanitation, wound care, daily living habits.....)
The Duke approach is totally different than what we saw in Dallas or Houston. Duke has everything listed for her and planned out. No other transplant center makes a potential patient go through 24 days of rehab and classes prior to being listed. Elissa will graduate next week and will have to continue rehab till transplant and then for life.
We stayed in a hotel for the first 3 weeks until we found an apartment and signed a 6 month lease. My wife is trying to make it a home for us much as possible as we will most likely be here for up to a year.
Post transplant Elissa will most likely be in the hospital for 10-21 days and then discharged with daily lab test and doctor visits for the first month then every other day lab work. After several months she will go to weekly visits then monthly visits. This process of monitoring her labs and anti-rejection drugs will eventually go to monthly lab visits.
We are still weeks away from being listed for transplant.
You can follow her on Facebook....Just Breath For Elissa


Cards and notes are always welcome


ELISSA HASE
2608 Erwin
APT 417
Durham N.C. 27705

[gshase]

Thanks Paul I re-posted it