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Gary H 1978 911 SC
 
Join Date: Oct 2003
Location: Fort Worth Texas
Posts: 1,287
Elissa Is Packing For Duke....Long Term

Elissa and my wife fly out tomorrow on 1 way tickets to stay at Duke Medical Center until getting a lung transplant or the new medication (triple-combination modulator elexacaftor/tezacaftor/ivacaftor (Trikafta™) kicks in. We are planning a 6 month all inclusive stay in North Carolina. I will get to drive it a few days after they get settled in and will bring a boat load of things they couldn't fly with.
This has been a 2 year process to get us scheduled for Duke. I kinda have feelings I can't describe.
Our house is full of her friends tonight and we are happy to have a packed house.

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Gary H 1978 911 SC
Old 12-11-2019, 06:44 PM
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Good luck, and I hope things work out for you.
I’m not specifically religious, and I can’t be there - but imagine us sitting across a table, holding hands, and praying for the blessings of a higher power. That is what is in my heart.
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Old 12-11-2019, 06:52 PM
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Fantastic!
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Old 12-11-2019, 07:05 PM
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Cars and Cappuccino
 
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Welcome to North Carolina! Hope the holidays are filled with friends and family despite the distance.
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Old 12-11-2019, 07:09 PM
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Great news! Best of luck for you and your family with this. Elissa is in my prayers.
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Old 12-11-2019, 07:29 PM
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Safe travels and I’m certainly praying for you guys! You have one tough little girl there. I doesn’t matter how big or old they get, she’ll always be your little girl!
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Old 12-11-2019, 08:02 PM
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What?!?!
 
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Quote:
Originally Posted by gshase View Post
I kinda have feelings I can't describe.
Wow. So awesome. I think I have feelings I can’t describe.
Many prayers of Peace, Strength and Excitement for the next steps.

Looking forward to the updates. Six months? You’re no stranger to humidity.
But you will get some awesome sweet tea!

Much love for the whole family to y’all !!
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Last edited by DonDavis; 12-11-2019 at 08:19 PM..
Old 12-11-2019, 08:12 PM
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aka 'vageen'
 
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Gary, thank you for sharing this journey with us. This is certainly better than what you shared with us 2 years ago. I hope everything goes per the plan, meds or operation. I’m hoping for a happy outcome for Elisa.
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Old 12-11-2019, 09:40 PM
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Almost there! Godspeed Elissa!
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Old 12-11-2019, 10:04 PM
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Great news! You are all in my thoughts. Best wishes to getting settled in through the holidays.

Cooper
Old 12-11-2019, 10:10 PM
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Quote:
Originally Posted by wdfifteen View Post
Good luck, and I hope things work out for you.
I’m not specifically religious, and I can’t be there - but imagine us sitting across a table, holding hands, and praying for the blessings of a higher power. That is what is in my heart.
Well said Patrick!

And Gary, just so you know I'm praying for a great outcome from the other side of the world.
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Old 12-11-2019, 10:23 PM
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All here pulling for Elissa!
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Old 12-11-2019, 11:09 PM
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Let the journey begin ! I think I am almost as excited as you for this to begin. My prayers go with you all as this new beginning gets underway !
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Old 12-12-2019, 03:22 AM
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Hoping for the best possible results and a Merry Christmas and Happy New year to your entire family .
Old 12-12-2019, 04:54 AM
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Hoping for a great outcome for her. She is a fighter that is for sure.

Dave
Old 12-12-2019, 04:55 AM
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The Carolina Blue sky is shining brightly at Duke this morning.....

Best to you all
Old 12-12-2019, 05:53 AM
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Thanks for the update.

She can do this.
You, and your family can do this.
You are strong people.

Continued prayers for the full recovery.

Bill K
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Old 12-12-2019, 10:18 AM
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Thank you for this update. I wish you and Elissa all the best!!!
Old 12-12-2019, 10:22 AM
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Cannot say it any better than Patrick has already . I've been following your threads for a while now, and keep an eye on on FB for updates . Best wishes to you and your family .
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Old 12-12-2019, 11:12 AM
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Wishing Elissa and family a great Xmas and New Years. Hoping and praying for the best.

Old 12-12-2019, 12:20 PM
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