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Gary H 1978 911 SC
 
Join Date: Oct 2003
Location: Fort Worth Texas
Posts: 1,306
Elissa Is Listed For A Lung Transplant

I guess it was several months ago that I posted after Elissa after she had a 87 day stay in the Hospital starting at 23rd of Dec. Time has made her a lot stronger... Lung function test up from 17 now @ 28, her weight from 99 now @ 115 lbs. She is ordered by her medical team to get even stronger and be more independent. She is still very sick and C.F. has taken a toll on her. A lung transplant is not a cure but a change in lifestyle. Never again can you go to a lake, Eat sushi , Eat at a buffet, Eat a rare steak or have fresh fruit.
A work up for transplant takes 3 to 4 months and visiting every medical specialist there is to get signed off on that there are no other medical issues. We had everything signed off and Tuesday we were approved by the Transplant Board......The only thing left was Her Insurance and we were just notified today, she is listed for transplant. Elissa took the call and the look on her face was a big smile.
Elissa has a Facebook and now she has a Just Breath For Elissa page open to the public so she doesn't drag all of her friends down with her C.F. It does consume your life and it was her choice not to have everything in your life relating to your illness.
There is a Video of my wife accessing her port (IV) @https://www.facebook.com/search/top/?q=just%20breathe%20for%20elissa
Again thanks for the gifts and support.

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Gary H 1978 911 SC
Old 08-10-2016, 12:48 PM
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MBAtarga's Avatar
 
Join Date: Jul 2001
Location: Lawrenceville GA 30045
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I remember the other thread you had going with periodic updates. Good luck on getting the transplant!
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Mark

'83 SC Targa - since 5/5/2001
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Old 08-10-2016, 01:08 PM
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Zink Racer
 
Join Date: Aug 2005
Location: Spokane WA
Posts: 3,998
All the best to you and your family. I worry every day still about my adult kids who are otherwise healthy. Helps me realize how blessed I am.
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Jerry
1964 356, 1983 911 SC/Carrera Franken car, 1974 914 Bumblebee, a couple of other 914's in various states of repair
Old 08-10-2016, 01:22 PM
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Join Date: Jun 2009
Location: St Paul MN
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Tough girl, happy to hear that she's getting better each day.
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Rutager West

1977 911S Targa Chocolate Brown
Old 08-10-2016, 04:14 PM
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Slackerous Maximus
 
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Join Date: Apr 2005
Location: Columbus, OH
Posts: 18,188
Best of luck. Our prayers are with you and your family.
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Old 08-10-2016, 04:29 PM
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Regenerated User
 
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Join Date: Jul 2003
Location: FL
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Prayers sent
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Old 08-10-2016, 04:53 PM
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Location: NJ
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All blessings to you and yours.
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Old 08-10-2016, 04:57 PM
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Mark Wilson
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Gary - we're sending prayers to you guys!
Old 08-10-2016, 05:30 PM
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Join Date: Sep 2002
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I remember texting her back around Christmas too. Glad to hear she's in good spirits and with hope on the horizon. Best to your family.
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Ken
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Old 08-10-2016, 06:31 PM
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Wonderful news!
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Old 08-10-2016, 06:33 PM
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Bland
 
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I like it when you post good news like this. I remember at Christmas feeling quite humble when I read your posts.
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Old 08-10-2016, 08:22 PM
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I am amazed at her good spirit. She deserves the best.
Cheers, Guy
Old 08-11-2016, 04:40 AM
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Driver, not Mechanic
 
Join Date: May 2013
Location: SF Bay Area
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Best of luck!
Old 08-11-2016, 08:30 AM
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Shaun @ Tru6's Avatar
 
Join Date: Dec 2001
Location: Cambridge, MA
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I hope it all works for you and your fighter.
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Old 08-11-2016, 08:38 AM
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Join Date: Apr 2001
Location: Linn County, Oregon
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Prayers sent...
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Old 08-11-2016, 09:37 AM
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best of luck!!!

...and RIP and peace+love to the angels on the donor side of things..
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Old 08-11-2016, 10:43 AM
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Join Date: Jul 2003
Location: Valencia Pa.
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Nothing but positive thoughts coming from this way. That girl has been through the ringer, she is a tough one! Cant wait to hear about the day she comes home again. Hang tough Elissa .

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Old 08-11-2016, 01:12 PM
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