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Gary H 1978 911 SC
Join Date: Oct 2003
Location: Fort Worth Texas
Posts: 1,306
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Elissa Update
The roller coaster ride for Elissa Hase!
LATEST UPDATE! Almost 60 days ago Elissa was sent home on hospice with a chronic unexplained fever that no antibiotic would fix. The doctors predicted she would not last to see 2018. We didn't even setup for Christmas. As many know right then, I took charge of meds and stopped everything I didn't think she needed. Hospice just gives comfort care meds. Miraculously, all fevers stopped and strength was building. However, her potassium was critically low and she needed to go into hospital for intestinal blockage. 2 weeks without eating, but she again pulled through. With her strength building, we were thinking about taking her to a beach within driving distance. Her last dream she told Hospice social workers. One night, my sweet friend Lana offered to come stay with her in Maui. WOW! I thought. Can we actually pull this off? When she was discharging from hospital, we had the option for her to get off Hospice and be placed on palliative care with active CF treatment again. Palliative care doctor helped us with the paperwork to go to Maui and 2 weeks later we were leaving for 10 days. We had to buy an O2 concentrator for the trip that could support her because insurance would not accommodate. Right out of the gate, the stressful ride for 8.5 hours with only battery power (no AC works on plane for trransformers only small electrical) we barely made it with finally using AA O2 rebreather tank the last 45 min. Finally, we were safe in Maui. Small fever for her on day 3 and runny nose started her on preventative Tamiflu and prednisone, but she pulled through and had a fabulous time. 6 hour flight back was a breeze (fed ex 2 more batteries at $900 before we went), but we made it home to a frozen DFW. The 10 day trip was the best medicine ever. Elissa became stronger, active, eating well....even with half her lung dead on the right side and 4L of constant O2. SO..... This week has arrived. She has some sinus issues but more her normal issues. Trying so desperately to keep her well. THE GOOD NEWS.... On Tuesday, we received a letter stating she is going to San Antonio for LUNG TRANSPLANT EVALUATION on Feb 5th. JUST WOW!!!!! As for Houston Methodist, we are still trying to get paperwork for insurance to cover, but the fight for that is not looking good. If San Antonio denies her after Evaluation, then she is able to go to Duke. We are hopeful once again. ❤ Whatever your beliefs, prayer, fate, mothers determination, the will to keep living........ Elissa has surprised and far surpassed the doctors predictions that started this journey 2 years ago. THANK EACH AND EVERYONE OF YOU FOR SUPPORTING ELISSA THROUGH THIS JOURNEY. She still has a long ways to go. We welcome your support, love, thoughts and prayers. You never know what tomorrow brings. We are looking for Elissa's rainbow of life. Love to all❤ (Pic was the flight going to Maui of the last 45 min after her batteries were all used) 
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Gary H 1978 911 SC Last edited by gshase; 01-19-2018 at 10:42 AM.. Reason: Spelling |
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01-19-2018, 10:38 AM
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Join Date: Mar 2004
Location: Los Angeles
Posts: 17,361
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God darn it, who's the hell is cutting onions again near me.
Good news is always welcome here. nice to hear you guys had a great time in Hawaii. She looks great in that photo. Last edited by look 171; 01-19-2018 at 12:48 PM.. |
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01-19-2018, 11:03 AM
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Join Date: Apr 2002
Posts: 30,438
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WOW....just WOW
 !Your journey has been both inspirational and humbling for me....thank you for sharing with us... |
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01-19-2018, 11:15 AM
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Join Date: Apr 2002
Posts: 30,438
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Quote:
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01-19-2018, 11:17 AM
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My friends call me, Top
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That is fantastic !
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Matt '87 924S |
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01-19-2018, 11:20 AM
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Join Date: Dec 2002
Location: Dahlonega , Georgia
Posts: 14,596
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Must have been a bloomin onion nailed me too
 Keep on truckin girl !
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2002 Boxster S . Arctic silver + black top/int. Jake Raby 3.6 SS engine " the beast ". GT3 front bumper, GT3 side skirts and GT3 TEK rear diffuser. 1999 996 C4 coupe black/grey with FSI 3.8 engine . Rear diffuser , front spoiler lip with ducktail spoiler . |
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01-19-2018, 11:21 AM
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Wow Elissa you are amazing. Happy you and your family had a great holiday!
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01-19-2018, 11:56 AM
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Bland
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Best thread of 2018 so far!
Even though I have tears in both my eyes right now, your post made my day! Go Elisa!
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06 Cayenne Turbo S and 11 Cayenne S 77 911S Wide Body GT2 WCMA race car 86 930 Slantnose - featured in Mar-Apr 2016 Classic Porsche Sold: 76 930, 90 C4 Targa, 87 944, 06 Cayenne Turbo, 73 911 ChumpCar endurance racer - featured in May-June & July-Aug 2016 Classic Porsche |
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01-19-2018, 12:11 PM
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That is such great news! Thanks for the update and all the best to Elissa, you and Sharon!
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01-19-2018, 12:32 PM
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Join Date: Jul 2004
Location: Maryland
Posts: 31,439
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The eyes have it.
Blessings to you, young lady.
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1996 FJ80. |
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01-19-2018, 12:35 PM
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wow. simply wow.
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Don Plumley M235i memories: 87 911, 96 993, 13 Cayenne |
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01-19-2018, 12:43 PM
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Makes my day when I get to read stories of her getting better. Thanks for posting.
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Rutager West 1977 911S Targa Chocolate Brown |
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01-19-2018, 12:48 PM
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Join Date: Mar 2004
Location: Los Angeles
Posts: 17,361
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Gary, as I read more of this thread, I go back to look at that pic and it really put a smile on my face seeing her so happy. As they say, "You go girl".
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01-19-2018, 12:53 PM
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Thank you for including us in your journey through life. I know it helps me keep things in perspective.
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Scott 1978 911SC Petrol Blue |
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01-19-2018, 01:18 PM
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Join Date: May 2013
Location: Space Coast
Posts: 5,260
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What wonderful news, thank-you for the update! I certainly will keep Elissa and you in my prayers.
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Paul 82 911SC - 3 yrs of fun (traded-in) 06 MINI Cooper S - 19 yrs of fun (sold) 2011 Cayman (she purrs, loudly) |
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01-19-2018, 01:34 PM
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Registered
Join Date: Apr 2001
Location: Linn County, Oregon
Posts: 48,515
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Love the good news!
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"Now, to put a water-cooled engine in the rear and to have a radiator in the front, that's not very intelligent." -Ferry Porsche (PANO, Oct. '73) (I, Paul D. have loved this quote since 1973. It will remain as long as I post here.) |
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01-19-2018, 01:36 PM
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weekend wOrrier
Join Date: May 2011
Posts: 6,233
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I think the "onion" comments would have applied to me about 3 or four times now from various post in the past.
Today's post struck me as a... HELL YEAH!!!!!!!!!!!
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01-19-2018, 02:29 PM
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Join Date: Apr 2002
Posts: 30,438
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These were happy onions
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01-19-2018, 03:11 PM
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weekend wOrrier
Join Date: May 2011
Posts: 6,233
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Agreed! I think the post that got me was around mid december when a lot of the meds got dropped and Elissa was feeling better and 2018 was in sight. Now- over 1/2 way through Jan.
These updates make my day! Go Elissa go! |
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01-19-2018, 03:26 PM
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Join Date: Sep 2007
Location: Ventura County, CA
Posts: 4,018
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You are a wonderful and loving father Gary, and Elissa is a beautiful girl and a strong fighter. Elissa is in our prayers and I have a strong feeling that she'll get the transplant she needs. YOU GO GIRL!
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Craig T Volvo V60 - Daily Driver (I love it!) 997 Turbo - FVD Exhaust, GIAC Tune - 542 dyno hp on 93 oct 1972 Chevy K-10 Pick-Up Truck Hugger Orange
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01-19-2018, 04:34 PM
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Rudolf
Blue Max
Pearl
Lexus RX350
Crop Duster
Kachow
1976 Porsche 930
1987 Porsche Carrera 3.2 
1977 Porsche 911S Targa
