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Slippery Slope Victim
 
NY65912's Avatar
 
Join Date: Oct 2001
Location: Brooklyn, NY USA
Posts: 4,461
Update:

I saw my CR surgeon a few weeks ago who liked the progress of the fistula and said he thought it was time for an immunosuppressant to clear it up since there is no longer any infection.

I saw my Crohn's doc last night and he is going to start me on Humira.

I've had all the blood, TB and stool testing with everything coming back negative so I am good to go.

It will be a few weeks until I'm up and running on the Humira. I still have to get pre approval from the insurance company but it is covered, with a $40. copay.

JP, I know you have been on Humira, thoughts, advice? Anyone else feel free to chime in.

On a side note, my GI doc brought my case up at a confrence of GI docs and they unanimously agreed to go with an immunosuppressant in my case because of the active fistulizing Crohn's in the colon, (which only used to be in the ileum).

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MikeČ

1985 M491

Last edited by NY65912; 01-21-2010 at 04:14 AM.. Reason: spelling
Old 01-21-2010, 04:13 AM
  Pelican Parts Catalog | Tech Articles | Promos & Specials    Reply With Quote #61 (permalink)
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Join Date: Oct 2005
Location: N.C.
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This same book is referenced earlier in this thread. The diet has helped lots of folks with this disease, including me.

It's worth taking a serious look at this book as opposed to drugs and surgery.


Quote:
Originally Posted by MadameButterfly View Post
Hello Mike. My husband is a regular contributor here and told me about your thread so I hope you don't mind my jumping in.

My adult daughter has had Chrons since grade school - horrifically painful and debilitating. We tried everything including steroids, hyperbaric oxygenation, and an intravenous backpack that totally bypassed her digestive system.

Finally, in her mid 20's, her former pediatric gastroenterologist told her about a diet that was having excellent results in the majority of the kids he was working with.

The book explaining it has been around for decades: Breaking the Vicious Cycle by Elaine Gottschall. The basic premise is that most persons suffering from bowel disorders have difficulty digesting complex carbohydrates.

My daughter followed Gottschall's Simple Carbohydrate Diet and the difference in her health has been incredible. She's totally off all meds, eats whatever she wants and only follows the diet if she senses she's overdone it or is under a lot of stress. She's avoided several flare-ups this way and is just going on with her life.

It's worth a look-at

Old 01-21-2010, 07:01 AM
  Pelican Parts Catalog | Tech Articles | Promos & Specials    Reply With Quote #62 (permalink)
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